Suddenly becoming sick leads to a rapid maturation in young individuals that only those who have been through significant life-changing events can understand. When one experiences an unprecedented and life changing event early in life, they are forced to face some of the hardest things in life, even if they aren’t ready for it. Things …
Mental Health and Being Chronically Ill at a Young age Read More »
As I mentioned in my post “My Full Story + Defining POTS”, I had an appointment set to see a neurologist who specializes in autonomic disorders; Dr. Laurence Kinsella in St. Louis, MO. I made the appointment right when I got sick in June of 2023. Initially, the appointment was made for June 2024, however …
First APPOINTMENT with autonomic disorders specialist Read More »
Attending school with a chronic condition certainly comes with its challenges. Though accommodations do exist, schools and universities are not familiar enough with dynamic chronic conditions. The education system in general emphasizes a grind mentality where its students and staff work until burnout. With limited breaks, limited mental health resources that are actually helpful, and …
So you were just diagnosed with a condition that causes “exercise intolerance” yet oddly enough your doctor tells you that your healing journey involves exercise to avoid deconditioning. Having POTS can put you in a lot of Catch-22 situations. You are supposed to increase your fluids by “a lot” (not very specific instructions), but not …
Dealing with one chronic condition by itself is a feat of its own. Unfortunately many of those who are chronically ill have dealt or will deal with another sickness or condition that will flare up their current condition or may have even given rise to it. For some, experiencing lengthened symptoms of a virus or …
Why is it so difficult to receive a diagnosis? What should you expect from doctors when inquiring about this condition? Receiving a POTS diagnosis is not an easy feat for most. You may be wondering how I’ve managed to turn the topic of simply receiving a diagnosis into an entire blog post. When you go …
What is POTS anyway? I, of course, get this question a lot. I wish I could come up with one straightforward answer that covers all the bases. When I am asked this, my answer certainly varies depending on who I am talking to and, in truth, how tired I am. When I am presented with …
